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Posted by on Sep 13, 2016 in Blog, PA SCI Research Bill, SCI CURE, SCI Research Fund Bill | 0 comments

Movement with Feeling

Hello all,

A couple of posts ago I asked for your ‘Readiness’ as we were making our first moves towards a Spinal Cord Injury Research Bill in Pennsylvania. Well, are you Ready? Because we already need you.

I made the trip out to PA during the first week of August to meet with Legislators and Researchers along with the half a dozen or so local SCI community advocates. Now when I use the word advocates, I don’t mean professionals or seasoned veterans in the advocacy sphere. I mean folks just like you who simply caught the vision of being able to put some of their energies toward expediting the cure work, and then acting on it. We’ve been meeting (virtually), talking, learning and prepping for the last 10 months for this initiative.

We met with several legislators and three groups of SCI researchers representing Drexel, Temple, Jefferson and Pitt. It was a good first trip, especially since Senator Mario Scavello agreed to sponsor a Bill modeled after our Minnesota Bill.

Now I just found out that Sen. Scavello introduced the Bill this past week. This was news because he told us he likely would not introduce it until the start of the 2017 session in January. Because there isn’t much time in the 2016 session it’s highly likely that nothing will happen with the Bill, but it does mean we can get the conversation started. Already Sen. Tartaglione (who has a SCI) has signed on as a co-sponsor.

So, here’s the ‘need you’ part. Whether you live in PA or not, whether you live in the US or not:

Please send a message to these legislators to say thank you for supporting the

“Spinal Cord Disability Research Grant Bill”

Senator Mario Scavello: marioscavello@pasen.gov

Senator Christine Tartaglione: christinetartaglione@pasen.gov

Also send a message to these Senators asking them to co-sponsor the Bill:

Senator Sean Wiley: seanwiley@pasen.gov

Senator Andrew Dinniman: andrewdinniman@pasen.gov

Senator Daylin Leach: daylinleach@pasen.gov

For those of you who have received my many messages in the past you know there are many more requests to come. For those of you who are new to receiving theses requests from me, know that it’s gonna be quite a few because this takes time. But also know that it can only happen with your help.

In my mind this requires a Movement with Feeling. We hope to add several states to the existing 11 states that have some kind of mechanism to fund innovations in the research to cure paralysis. My hope is that this will begin a Movement with Feeling that can spread across the US to reach our goal of a world without paralysis….a world where people who could not Move and Feel their bodies recover as much Movement with Feeling as possible.

Join Us

Thanks

M

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